Hospital support for SEND children and young people
Sometimes your child may need to visit the hospital to receive support or treatment.
When visiting the hospital, they must be able to attend any booked appointment. All health services have a duty of care to make changes and responsible adjustments for those with learning disabilities. This can include easy read documents, longer appointments and clearer signs. Find out more about your child's rights.
Visiting the hospital
If you or your child need help or advice while in hospital, you can ask a member of staff or contact the hospital's Patient and Liaison Service (PALS). They offer confidential advice, support and information for patients, families and their carers. They can help with concerns or problems that you may have using NHS services.
For any children who are being referred to hospital by their GP, you can ask PALS to check whether the hospital has a learning disability liaison nurse. This is a specialist nurse who supports people with a learning disability while they're in hospital to make sure they get the care they need.
Documents you may need to bring to the hospital
You may need to bring some documents when you visit the hospital:
- a health passport, which is a document about your child and their health needs. It also contains other useful information, such as your interests, likes, dislikes and preferred method of communication
- a medical referral letter, which outlines what the hospital staff should know about your child's disability and what reasonable adjustments they need.
The NHS and healthcare services have provided some helpful visual guides to support you and your child when visiting the hospital:
- what your child may see or hear whilst in hospital
- what happens in the adult's Accident & Emergency (A&E)
- what happens in a child's Accident & Emergency (A&E)
- what happens when your child visits a hospital (easy read)
- visiting a hospital if I have coronavirus (easy read)
- what happens if someone I know has coronavirus and needs to go to hospital (easy read)
- staying overnight, how to prepare your child
- the mental capacity act
- understanding giving consent to treatment
- hospital communications handbook
Care after leaving hospital
Each hospital in Kent has its own discharge policy, if you are unsure of the hospital's policy you can ask the ward manager or PALS.
When leaving the hospital, there should be a plan set in place. This plan can include transport from the hospital, or helping your child to settle in once they are at home. This care can involve medication or an ongoing care plan via your GP or social services.
You also may need additional support from our social services team, where you may need to be assessed by our community care team or you may require equipment or help adapting your home. Read how social services may be able to help you.
Alternatively you can use one of the following guides to explain the discharge and outpatient process to your child:
If you are unhappy with the support and help you have been provided during your hospital visit, you can contact one of the support groups to discuss your health rights.